Many of these patients cannot find knowledgeable healthcare, face obstacles in accessing social services and do not have the physical and emotional strength to be their own advocates.
The good news is that NEIDs are now receiving state and national attention. More good news is that scientific breakthroughs have brought a greater understanding of the biological abnormalities that may explain the debilitating symptoms associated with NEIDs. Even better, PANDORA Org and other patient organizations are now working together to advocate for physician education, increased government-funded research and government policies that will improve these patients' quality of life.
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