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Advocates Extraordinaire

As a result of the Advocates Extraordinaire™ program,
our organization was nominated for the Classy Awards in 2012.
Our Advocates Extraordinaire™ program provides leadership advocacy training for NEIDs patients to speak to the news media and advocate to their political leaders, as well as educating the public about the plight of the patients.


In 2007 and 2011, we sponsored leadership training sessions. As a result, some of these trained individuals spoke to congressmen in 2007 and 2011 and testified at the Chronic Fatigue Syndrome Advisory Committee meetings, effectively communicating the plight of people with neuro-endocrine-immune diseases.

Many of the past Advocates Extraordinaire™ training students later created their own nonprofit organizations or advocacy efforts.

Last update: September 28, 2014

Recent Training Sessions:

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