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The U.S. Centers for Disease Control and Prevention researches ME/CFS and Lyme disease.

Lyme - Due to patient advocacy and research findings, the CDC now acknowledges that Lyme disease can develop into a chronic illness and that some animal research is showing the Lyme bacteria can linger after treatment so that more research is needed.

ME/CFS - We also advocated for the CDC to bring the ME/CFS website information up to date based on latest research.

As a result, the Chronic Fatigue Syndrome Advisory Committee established a subcommittee to advise the CDC on what changes should be made.

Last update August 20, 2014
In 2013, our organization joined others in urging the CDC to include the 2-day CPET with gas exchange in their multi-site study to redefine ME/CFS.

In 2012, our organization joined others in announcing our position on the CDC CFS Toolkit, which bases its recommendation on flawed research in the United Kingdom. At the May 2013 Chronic Fatigue Syndrome Advisory Committee meeting, the CDC announced they have changed the toolkit and the new one will be posted soon.

Our 2011 CDC advocacy.

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