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New Jersey Advocacy

With the help of the LifeLyme and Veny Musum, we were successful in getting a resolution passed in 2010 in the New Jersey legislature. It says that an NEI Center™ should be created in the state. This became a model for resolutions passed in other states.

In addition to the awareness day or month proclamations that state and local governments have made for NEIDs, we also have advocated for state governments to take action that will improve the quality of life of NEIDs patients.

With the support of local politicians, patients, support groups and other organizations, we have been successful in the passing of two resolutions. Once adopted, the resolution becomes state policy and can be used to influence state government agencies.

Last update: July 19, 2014
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