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Ryan Baldwin's Story

Ryan Baldwin was very active

before he became sick with

a disease that left him in a

wheelchair or in bed most of the time.

The Baldwin family website has more information of the family's struggle.

ME/CFS Research Findings.

Ryan Baldwin, an 11-year-old soccer player and high-achieving student, started having headaches one summer. That fall, he was unable to concentrate enough to do his homework. Extreme fatigue caused him to be largely housebound, unable to go to school except one hour a day. He felt as though he had a run-down battery.

Any mental activity left Ryan in a “crash” for days. Brushing his teeth in the morning became so exhausting that he would feel as though he had run a marathon. Nausea, stomach aches and dizziness came and went, with little provocation. As the years passed, many of his friends went to school dances, but Ryan was in his bed, reserving all of his energy for homeschooling.

His mother took him to prominent hospitals, searching for answers. Ryan was diagnosed with chronic fatigue syndrome, also known as myalgic encephalomyelitis or encephalopathy.

In addition to the physical challenges, the family had to battle against government ignorance that led to his being removed from his home under false charges made against his parents. Due in part to a collaborative advocacy effort of our organization with others, Ryan was reunited his parents in February 2010. He still lives with limitations from ME/CFS.

The information contained in these topics is not intended nor implied to be a substitute for professional medical advice. It is provided for educational purposes only. You assume full responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended to be used for medical diagnosis or treatment.

Last update: February 10, 2014
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