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What if I have Lyme?

Finding a physician:

Physicians disagree on whether today’s testing methods are accurate and what testing is best. An infectious disease physician who has experience in diagnosing and treating chronic Lyme disease patients will likely be a patient’s best choice.

A national organization or state organization or support group may help in finding a local Lyme-literate physician.
A phone call to the receptionist inquiring on whether the physician accepts chronic Lyme disease patients may help in determining whether that physician is an expert in the field.

For Children:
Children are at a high risk of getting Lyme disease. Early diagnosis is important to recovery. Parents often have to become advocates for their children as they search for aphysician who understands the illness.

Support from others:
As with any chronic disabling disease, Lyme disease will have an effect on your relationships and impact your loved ones. You will need the understanding and emotional and practical support of loved ones. You could share this letter with them to help them understand. You can direct them to this website or to other national or state organizations.

Read Jill Justiss' story

Treatment Options:

Antibiotics - Some patients report that long-term antibiotic treatments provide them with improvement as long as they are on the antibiotics. However, not all patients see improvement with this treatment, and it is not recommended by all physicians. Some physicians discourage long-term antibiotic treatments.

Diet and supplementsTreatment may include dietary changes and supplements. Discuss this with your physician.

Other treatments -
Other chronic Lyme disease treatments may include detoxification, strengthening the immune system and modulating the hormones. A patient should consult with an experienced Lyme physician, commonly called a "Lyme-literate doctor" to see what treatment is appropriate in their case. 



A patient’s outcome will depend on many factors, including mainly early diagnosis and treatment. Possible co-infections or immune system health may affect treatment effectiveness.

The information contained in these topics is not intended nor implied to be a substitute for professional medical advice. It is provided for educational purposes only. You assume full responsibility for how you choose to use this information. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment or discontinuing an existing treatment. Talk with your healthcare provider about any questions you may have regarding a medical condition. Nothing contained in these topics is intended to be used for medical diagnosis or treatment.

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